WHAT IS CYSTIC FIBROSIS?
Cystic fibrosis is a life-threatening, genetic disease that causes persistent lung infections and progressively limits the ability to breathe. In people with CF, a defective gene causes a thick, buildup of mucus in the lungs, pancreas and other organs. In the lungs, the mucus clogs the airways and traps bacteria leading to infections, extensive lung damage and eventually, respiratory failure. In the pancreas, the mucus prevents the release of digestive enzymes that allow the body to break down food and absorb vital nutrients. For more information go to www.CFF.org
RACING TO BREATHE
A documentary about two young cyclist, takes you head first into the brutal world of competitive cycling amidst the chronic lung disease, cystic fibrosis. Manny and Tom Goguen, brothers, use the sport they love as a key treatment to fighting the disease they were born with, and hope to spread the message that exercise can be fundamentally important for those with cystic fibrosis. This film will take you into the daily routine of struggle and victory that they endure as they “Race to Breathe” “A brilliant step towards spreading the awareness about cystic fibrosis and the benefits of this great sport” “An intense reality check. It really struck me just how much their hearts are in the sport and their will to be alive and healthy”
Directed by Andrew Goodale Music by Case Butler Edited by Tom Mosby A Postrace production Brought to you by RACE CF
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ABOUT US - RACE CF
Inspiration in Motion for Cystic Fibrosis RACE CF is an inspirational cycling movement that directly helps those living with cystic fibrosis.
How did RACE CF and Racing to Breathe come about? It all started with a father who raced his bicycle at Wells Ave, a training race in Newton, MA. His oldest son,Patrick watched and cheered him on until he too was bitten by the competitive cyclist bug. Patrick in turn encouraged his younger brothers to join him. Two of his younger brothers, Manny and Tom have a pulmonary disease called cystic fibrosis(CF). CF effects the lungs and digestive systems of people who have this inherited disease. Even though their parents could have restricted their physical activity out of the fear of over tiring their lungs and bodies, they rejected that fear and treated Manny and Tom just like all there kids without an illness. This lead to a serious and fun commitment to competitive road racing and cyclocross. But the unexpected and even better result was their preservation in good health despite the often times debilitating affects of CF. Today, Manny, 24 and Tom, 20, are healthy, strong, active and happy young men with joyful childhoods behind them and looking forward to a full, interesting and happy long lives ahead of them. They, along with their six brothers, two sisters, 1 brother-in-law and their parents participate in fund raising for research for a cure for CF. Many advancements have been made, not the least of which is the realization of the positive impact cycling has had on their health and well being, thats the reason Racing to Breath came to be: to spread the life enhancing message and encouragement about not limiting oneself and finding and participating regularly in a fun and aerobically challenging sport, game or activity.
ABOUT - MANNY
BiographyManny Goguen is one of 10 children in the Goguen family. The third in line, with 7 brothers and 2 sisters, he’s the first one in the family born with the genetic disease cystic fibrosis(CF). Despite the difficulties of a pulmonary disease that also has a negative impact on his digestive symptoms, he has lead a very full and active life. Starting at age 12, he began racing his bicycle with his older brother, Patrick, in the cycling disciplines of road and cyclocross. He has had many successes, locally, nationally, and even abroad in Belgium. Over the years he has discovered the benefits of competitive cycling in maintaining good health while living with CF. It has become Manny’s passion to share this life changing message that vigorous aerobic activity is a vital part of a full and happy life for a person with CF. In June 2007, when Manny was 16 years old, he was hit by a truck while warming up for the first stage of the Fitchburg Longjos Classic, a 4 day stage race in Massachusetts. He was severely injured. He fought back valiantly. After 3 weeks in the hospital and months of rehabilitation and physical therapy to get back on the bike, began training again and building his strength. Eighteen months later, through dedication to his medications, therapies and hard training on the bike, he was selected to represent the United States at the Zolder World Cup in Belgium. He competed in several more races in Belgium that December. Manny attributes his health and well being, despite the challenges of CF, to the fun and vigorous sport of cycling. He encourages everyone to find what they like and pursue it, and don't be afraid!
ABOUT - TOM
BiographyTom Goguen is a competitive road and cyclocross cyclist. Since the age of 10 he’s been in love with riding his bike especially racing competitively locally and across the United States. Tom also has the genetic disease cystic fibrosis, a disease that effects the lungs and digestive system. He is the fourth child in the Goguen Family, with 7 brothers and 2 sisters. His next older brother, Manny also has CF. Together, they followed their older brother’s example and took up competitive cycling. As it turns out, this sport has been very beneficial to Tom in helping him to fight CF successfully, living a full and active and happy life despite its sometimes adverse affects on the body. One of Tom’s most memorable races was at the 2013 edition of The Grand Prix of Gloucester cyclocross race held every year at the end of September in Gloucester Massachusetts. It was an amazing day for him, everything went just right, he took the lead as soon as the race began and never looked back. He road to a great victory that day! Tom knows that in order to preform well on the bike he needs to take all of his medications and not miss his daily chest PT. Cycling is both a motivation to do that and also very good physical therapy in itself to help keep his lungs clear. Besides, its lots of fun! Along with Manny, his team, RACE CF, family and friends, he works to spread the life enhancing message of vigorous aerobic activity for those who live with any pulmonary disease.
We know first hand how difficult it can be to live with cystic fibrosis. If you or a family member has been diagnosed with cf, and would like to talk with us about living an active lifestyle with cf please do not hesitate to reach out! admin(at)racecf.org manny(at)racecf.org tom(at)racecf.org